Here I am again with what is turning out to be a bi-monthly link up with A Chronic Voice for me. These prompts often ‘allow’ me to write a few things that don’t make a whole blog, but feel good to talk about so always appreciate dipping into this.
I’ve recently had a particularly long migraine, and because my body decided that wasn’t enough, I then experienced a long stage of what some have coined ‘the hangover’, where the pain is usually not so severe, but a tiredness that isn’t cured by sleep is in full effect. I kept thinking it is gone but then the extreme lethargy hits me like incoming fog; slow but all-consuming. Waiting for it to pass used up all my reserves of acceptance, and now that it’s gone I have to find more, to accept that I can’t ‘catch up’ on what I didn’t do; it just has to stay missed.
Living on a narrowboat means a lot of things that are different to a house. One major one is how much your floor moves around. I think you’d have to be very sensitive to sea sickness for it to affect you but it can wake me up even with just Tom moving about the boat. As it comes to winter, us ‘constant cruisers’ are left, meaning the numbers of boats going by, causing the boat to move around, diminishes to a few a week, rather than a few an hour we have had the last few months. I happily part with this interruption, and it means I feel more positive about the winter than I ever have done!
Preserve: ‘To keep alive or in existence’. Keeping alive with chronic illness is often not the problem and I have heard people with migraine who have had cancer, talk about how the process for cancer has been much more straightforward – still horrific, obviously, but the pathways set up just so much clearer. With life threatening conditions, keeping alive is something to fight for. For me, staying alive has felt like the least of my problems, more acutely at times than others.
Affirming AND Loving 🙂
My partner, Tom, and I have recently written wills and got matching rings for our thumbs, as our alternative to marriage. I didn’t feel like we needed affirmation, as such, but every time I look at his ring, it makes me smile. Not just that we have rings, but it affirms in me that we want the same things, by both being happy to try an alternative way of living and loving.